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      What is ME

      ME stands for Myalgic Encephalomyelitis.
      Benign Myalgic Encephalomyelitis (ME)/Post Viral Fatigue Syndrome (PVFS) is a multisystem, complex, acquired illness with symptoms related mainly to the dysfunction of the brain, gastro-intestinal, immune, endocrine and cardiac systems. ME/PVFS had been classified as a neurological disorder in the World Health Organisation's International Classification of Diseases since 1969 (ICD 10 G93.3). This debilitating neurological illness is currently classified by the World Health Organisation under ICD-11 Code: 8.E49.

      The Chief Medical Officer's Report on the subject of CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis) issued in January 2002 recognises that "CFS/ME should be classed as a chronic condition with long term effects on health, alongside other illnesses such as multiple sclerosis and motor neurone disease

      To date there is no known specific medical diagnostic test to determine or confirm a correct diagnosis nor is there any specific treatment for this condition.

      >What is ME? What is CFS? >Guidelines for ME IiMER Leaflet

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      Our annual international Conferences and research Colloquiums are designed to bring together researchers, clinicians, patient groups and patients/carers in order to make progress in research into ME. These are CPD-Accredited events held in London. A sample of conferences is in our conference trailer below.

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      Nov 24: Christmas cards available IiMER
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      Oct 24: A Decade of Centre of Excellence for ME IiMER
      Aug 24: ME/CFS clinic opens in Iceland IiMER
      Aug 24: #IIMEC16 Conference Videos IiMER
      Aug 24: How We Effectively Energise ME Research IiMER
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      UK Centre of Excellence

      Disclaimer

Gibson Inquiry Press release 1 December 2005

Group on Scientific Research into M.E.*


Press Release
Date: 01-12-05
Re: Inquiry into progress in the scientific research of M.E.
The Group on Scientific Research into M.E.

Dr. Ian Gibson MP today publicly launches the Group on Scientific Research into M.E.

Dr. Ian Gibson MP said:
“The Chief Medical Officer’s report into CFS/ME represented an important step in Government’s recognition of the seriousness of M.E. Three years on from this report, the time is right to evaluate how much further we have come in understanding the causes of M.E., establishing a programme of research on all aspects of the condition and securing adequate investment for this research.”


Terms of Reference:
The Group on Scientific Research into M.E. has been established to assess the progress of scientific research on M.E., since the publication of the Chief Medical Officer’s Working Group Report into CFS/ME in 2002. In particular the group has been established to:
o increase public understanding of scientific research into ME/CFS
o evaluate progress in the development of a full programme of research into ME/CFS
o identify research and funding requirements in establishing the cause of ME/CFS
Starting in early 2006, hearings will take place as part of the Group’s inquiries. These hearings will take oral evidence from M.E. sufferers, leading medical experts and government officials on the progress of scientific research on the condition. The group has also written to both leading medical experts and charity organisations requesting written evidence on this subject, with a deadline for written submissions of Tuesday the 20th of December. It is the group’s aim to release a report based on this evidence following the conclusion of oral hearings. We are not inflexible in our agenda, but we wish to conclude it by Easter.
Enquiries about the group should be made in writing to Dr Ian Gibson MP, House of Commons, London, SW1A 0AA.
Unfortunately, due to administrative constraints on the group, we will not be able to respond to replies sent in return to this email address.
Ends
Editors Notes:
* M.E. is also known as Chronic Fatigue Syndrome (CFS). It is sometimes diagnosed as Post Viral Fatigue Syndrome (PVFS).

.............



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DISCLAIMER

The pages on this web site are offered as a free access information provider.
The views expressed on this web site by contributors and others do not necessarily represent those of Invest in ME Research.

No medical recommendations are given or implied.

Patients with any illness are recommended to consult their personal physician at all times.

The views expressed at the Invest in ME Research International ME Conferences and at other Invest in ME Research conferences by the presenters and delegates to the conference and any information material distributed are their own personal opinions that are not necessarily shared or endorsed by the Trustees of Invest in ME Research.

Invest in ME Research accept no responsibility for the views expressed or any subsequent action taken.

The contents of any presentation should not be deemed to be an endorsement, recommendation or approval of such content by Invest in ME Research.

The materials presented at the Invest in ME Research International ME Conferences do not constitute medical advice.

No medical recommendations are given or implied by Invest in ME Research.

Any person registering or attending the conference who may take any action or consider medical treatment or referrals should take detailed advice from their own medical practitioner. Invest in ME Research disclaims any implied guarantee about the accuracy, completeness, timeliness or relevance of any information contained at the conference. By registering for or attending the conference you agree that Invest in ME Research is not liable for any complications, injuries, loss or other medical problems arising from, or in connection with, the use of or reliance upon any information contained in the conference.

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Current News Items


Date Item Source
Nov 24: Christmas cards available IiMER
Nov 24: Taking to new skies IiMER
Oct 24: A Decade of Centre of Excellence for ME IiMER
Aug 24: ME/CFS clinic opens in Iceland IiMER
Aug 24: #IIMEC16 Conference Videos IiMER
Aug 24: How We Effectively Energise ME Research IiMER
Aug 24: Post-Conference Week 2024 Notes IiMER
July 24: 2025 International ME Conference Week IiMER
June24: Journal of IiMER for conference week

Current News About Invest in ME Research Events

#YEMERG05 Young EMERG - International Early Career Researcher Conference/Workshop 2025

The fifth workshop organised by the charity for young / early careeer researchers - in association with our European ME Research Group Early Career Researcher network Young EMERG. This will take place in May 2025 More details here.

#BRMEC14 14th International Biomedical Research into ME Colloquium

#BRMEC14 - our fourteenth international Biomedical Research into ME Colloquium - will take place over two or three days on 28 -30 May 2025. More details here.

Other events in International ME Conference Week 2025

Other events are being planned during the 27-30 May 2025 conference week Keep updated using this lik.

#EMERG25 European ME Research Group in person meeting

#EMERG25 - A full in person meeting for the European ME Research Group (EMERG) will take place at Hinxton Hall on the Wellcome Genome Campus near Cambridge, UK on 27th June 2025